Salon.com flushes its credibility down the toilet
Damn.
I had been tempted to try to let this cup pass, but I couldn't, not after Skeptico, PZ, and several others e-mailed me about this article, seemingly expecting a response. I thought about just chilling out last night, enjoying Game 4 of the NBA Finals, and letting a response wait until next week, but the more I thought about it, the harder it was to wait. Thank heaven for laptops and wireless networking.
Believe it or not, I've been a fairly regular Salon.com reader for at least the three years. Despite its leftward tilt, I've generally enjoyed the writing and features. I've even linked to Salon.com articles and features on occasion. Now I'm going to have to reconsider my opinion of the site. Why? Salon.com has just plopped down on the web the biggest, steamingest, drippiest turd I've ever seen it publish, an article so mindnumbingly one-sided and uncritical that in my eyes it utterly destroys nearly all credibility Salon.com has had as a source of reliable news and comment. Honestly, the editors of Salon.com should hang their heads in shame for publishing this paranoid piece of fear-mongering and trumpeting it as "investigative reporting."
The article to which I refer is, of course, Deadly Immunity (which was a "coinvestigation" by Salon.com and Rolling Stone--a magazine whose attempts at investigative journalism I haven't taken seriously in years). It's a one-sided account by Robert F. Kennedy, Jr. of the supposed link between thimerosal in vaccines and autism that is being promoted by antivaccine activists as an indictment of the government and pharmaceutical companies. For example, the Schaefer Autism Report e-mail list reports that ABC News has cancelled appearances by RFK Jr. on 20/20 and Good Morning America this week. The e-mail invokes the usual conspiracy-mongering, saying, "Our opinion is that they are more concerned about protecting their huge advertising revenues from the pharmaceutical industry than reporting news that could protect pregnant women, infants and children from mercury tainted vaccines." Personally, I suspect it was because ABC News probably figured out that the article was a biased and shoddily researched piece of crap, but then that's just my opinion and hope. Certainly, the newsletter does nothing to dispel my suspicion that this was nothing more than a propaganda piece:
Lujene Clark, co-founder of NoMercury and A-CHAMP (Advocates for Children's Health Affected by Mercury Poisoning), worked extensively with Mr. Kennedy and his office over the past several weeks in preparing the article for publication. The print copy will contain a sidebar from Ms. Clark, providing perspective from her experience as the mother of a thimerosal-injured child and advocate for removing mercury from vaccines.
Quote mining. The article begins by making dire insinuations about a conference that was held at the CDC, known as the Simpsonwood Conference, after the conference center where it was held in 2000. It is not an auspicious start, as RFK Jr. does what mercury-autism activists do best: quote-mining. This meeting was a preliminary meeting about the Vaccine Safety Datalink (VSD). The entire transcript (warning: big file) of the meeting is over 260 pages long (although there is a version with selected excerpts), and RFK Jr. has carefully chosen a couple of quotes that, when taken out of context, sound like a coverup. I haven't had time to read the whole transcript (and I can assure you that what I have read of it is incredibly dry and dull), but what I see is a lot of discussion about the consistency and accuracy of the early data collection, sources of potential bias in the studies, and debate about what it means. The quote about how the data have to be "handled" is described by RFK Jr. thusly:
Dr. John Clements, vaccines advisor at the World Health Organization, declared flatly that the study "should not have been done at all" and warned that the results "will be taken by others and will be used in ways beyond the control of this group. The research results have to be handled."
I am really concerned that we have taken off like a boat going down one arm of the mangrove swamp at high speed, when in fact there was not enough discussion really early on about which way the boat should go at all. And I really want to risk offending everyone in the room by saying that perhaps this study should not have been done at all, because the outcome of it could have, to some extent, been predicted, and we have all reached this point now where we are left hanging, even though I hear the majority of consultants say to the Board that they are not convinced there is a causality direct link between Thimerosal and various neurological outcomes.
I know how we handle it from here is extremely problematic. The ACIP is going to depend on comments from this group in order to move forward into policy, and I have been advised that whatever I say should not move into the policy area because that is not the point of this meeting. But nonetheless, we know from many experiences in history that the pure scientist has done research because of pure science. But that pure science has resulted in splitting the atom or some other process which is completely beyond the power of the scientists who did the research to control it. And what we have here is people who have, for every best reason in the world, pursued a direction of research. But there is now the point at which the research reults have to be handled, and even if this committee decides that there is no association and that information gets out, the work that has been done and through the freedom of information that will be taken by others and will be used in ways beyond the control of this group. And I am very concerned about that as I suspect it is already too late to do anything regardless of any professional body and what they say. (p. 247)
Confusing correlation and causation. The article repeats the usual canard about how autism was unknown before the 1940's, which, coincidentally was when thimerosal-containing vaccines were first used. The article even goes so far as to claim:
The disease was unknown until 1943, when it was identified and diagnosed among 11 children born in the months after thimerosal was first added to baby vaccines in 1931.No, the reason the disease was "unknown" until 1943 was because it was not described as a specific condition by Dr. Leo Kanner until 1943, after which Dr. Hans Asperger described a similar condition that now bears his name in 1944. Before that, although Dr. Eugen Bleuler had coined the term "autism" in 1911, no specific diagnostic criteria existed for the disease. Even for decades after 1943 autism was not infrequently confused with mental retardation or schizophrenia, and over the last two decades the diagnostic criteria for autism and autism spectum disorders have been widened. In any case, if thimerosal in vaccines were the cause of autism, we would expect autism rates in Denmark and Canada to have plummeted recently, because Denmark eliminated thimerosal from its vaccines by 1995 and Canada removed them around the same time. No such decrease in autism rates has occurred in either country, even though there has been more than enough time for such a decrease to make itself apparent if there were truly a link between mercury exposure and autism. I would ask the mercury-autism activists: If this particular correlation does mean causation, if mercury in thimerosal is indeed a major cause or contributor to autism, why is it, then, that autism rates have not started to fall dramatically in Denmark and Canada by now? That there has been no such decrease is very strong epidemiological evidence that there is no link.
RFK then goes on to list a bunch of studies supposedly showing how toxic thimerosal is, berry-picked and without descriptions of the actual doses of thimerosal used. However, the most idiotic statement is here:
In 1930, the company [Eli Lilly] tested thimerosal by administering it to 22 patients with terminal meningitis, all of whom died within weeks of being injected -- a fact Lilly didn't bother to report in its study declaring thimerosal safe.
Double standards in looking at "conflicts of interest." RFK Jr. goes on and on about alleged conflicts of interest by vaccine researchers who accept funding from pharmaceutical companies, going so far as to imply that the Institute of Medicine reports of 2001 and 2004 that stated that there is no link between mercury and autism were basically done at the behest of the pharmaceutical companies, never mind the comprehensive review of the literature in 2004 that also failed to find a link. It's the usual conspiracy-mongering insinuations we hear from antivaccination activists and other types of cranks. However, in marked contrast, RFK Jr. approvingly cites the research of Dr. Mark Geier and his son David, both of whom are activists for the mercury-autism crowd, never once mentioning that Dr. Geier is a professional expert witness for vaccine plantiffs, who has been involved in over 100 legal cases brought against vaccine manufacturers and the government on behalf of parents and whose testimony has been disallowed in some for not being sufficiently qualified. Dr. Geier's son David runs a company called MedCon, a medical–legal consulting firm that helps vaccine injury claimants to obtain money from both the National Vaccine Injury Compensation Program and through civil litigation.
Hmmm. Sounds to me as though the Geiers have a definite financial conflict of interest when it comes to vaccine studies, and they have published several studies that are widely cited by antivaccination activists as "proof" of a mercury-autism link. None of their studies has ever failed to show such a link. I wonder why RFK didn't see fit to mention that, given his great concern over conflicts of interest in vaccine research. He also didn't mention that the Geiers have used shoddy study methodology and also engaged in data collection irregularities, drawing a rebuke from the CDC and suspension of Dr. Geier's IRB approval from Kaiser-Permanente. Overall, RFK Jr. seems pretty selective in his outrage over conflicts of interest and shoddy research, doesn't he?
The "hidden hordes" fallacy. RFK Jr. cites Professor Boyd Haley, Chairman of the Department of Chemistry at the University of Kentucky, who is an activist and Chair of the Advisory Committee for Toxic Teeth, an anti-amalgam group and whose fallacious reasoning with regards to mercury and autism has been pointed out by Peter Bowditch. This is the same Boyd Haley who got into trouble last year for labeling autism as "Mad Child Disease," leading to a demand for him to apologize, which he has refused to do. Haley is quoted as saying "If the epidemic is truly an artifact of poor diagnosis, then where are all the 20-year-old autistics?" I'll borrow Michelle Dawson's response to that fallacy, which she was kind enough to have posted in the comments of my blog while responding to David Kirby's recent book on vaccines and autism:
Mr Kirby deploys the "hidden hordes" to express his disbelief in the possibility that there is no autism epidemic. Were numbers of autistics steady over the years, he argues, America would be clogged with aging hopeless autistics gruesomely burdening society. Mr Kirby cannot find us (I'm one of his "hidden hordes") how and where he expects (doomed and confined to institutions), so he denies we exist.
Szatmari et al (1989) suggests that Mr Kirby should look for his hordes in university records. In a follow-up of autistics diagnosed as children before 1970, 7 of 16 had university degrees (one was an MBA).
Just to reiterate – there is no autism epidemic. Diagnostic criteria have widened and reporting methods have vastly improved. There may well be an increase in actual case percentage but epidemic? Hardly.
The bottom line is that this article is indeed a humongous runny, stinking turd. Salon.com and Rolling Stone have let their readers down, contributed to the hysteria over a probably nonexistent link between mercury and autism, and utterly trashed their own credibility in the process. They've handed the antivaccination activists a significant propaganda victory and an article that they will be citing for years to come, frightening parents who wonder if vaccines are safe and wrongly adding to the guilt that parents of autistic children already feel by making them wonder if they were responsible for their child's condition.
ADDENDUM #1: Argh! It's been pointed out to me that Tom Tomorrow, one of my favorite lefty cartoonists, has drunk the thimerosal-autism Kool Aid as well (the June 16 entry on his blog, if the link doesn't work correctly). Well, my opinion of him has just fallen several notches. It just goes to show, with Dan Burton, Salon.com, and Tom Tomorrow all falling on the same side of the fence in this issue, that mercury-autism junk science is the fallacy that all sides of the political spectrum seem to like to fall for, although my perception persists that it is more favored on the left.
ADDENDUM #2: Bummer. It looks like ABC News will show the interviews with RFK Jr. about this story after all.
ADDENDUM #3: Autism Diva has weighed in and posted the entire A-CHAMP Action Alert that I had quoted. (This piece was more than long enough already, which was why I didn't post the whole thing myself.) Soapgun has also pointed out that Don Imus is on board the mercury-autism bandwagon big time. Ali at blendor has also castigated Salon.com, beating me to it.



















126 example(s) of insolence returned:
At 6/17/2005 9:21 AM,
I, too, frequently visit Salon.com, and had even been considering buying a subscription. However, I was terribly disappointed that Salon fell for anti-vaccination pseudoscience. Interestingly enough, my younger brother was recently (approximately a year ago) diagnosed with Asperger's. He was almost 21 years old when this diagnosis came in. I guess he's another member of the "hordes". Of course, he wasn't speech delayed as a child, and has a higher-than-average IQ, which probably helped obscure the signs of autism. Sigh.
At 6/17/2005 10:08 AM,
Man.
I was almost thrown for a minute. I usually trust Salon. Something seemed very off while reading that article, however. And then when I did a literature search on PubMed, it also seemed weird that while other researchers were finding no causal link, there was paper after paper by the Geiers that did—and what's more, as a medical student, I had never heard of them. You would think I would have heard about something like this, right?
So thank you, Orac, for definitively easing my mind that those hair feelings of doubt were indeed my surprisingly effective intuition.
At 6/17/2005 10:17 AM,
Salon isn't the only one - British satirical magazine Private Eye is still banging the drum for the MMR-causes-autism canard, even though the evidence disproving this is now so overwhelming that you'd have to adopt a creationist blind-faith mindset to deny it.
At 6/17/2005 10:21 AM,
Its very depressing having to read stuff like that and see my daughter devalued. I made the mistake of reading the Huffington Posts comment on the affair - depressing reading all round, especially the increasingly shrill comments of a lot of parents I'm sad to see.
But its always nice to come here and know there are people who treat autism with a bit of respect and who value fact over opinion. Thanks.
At 6/17/2005 10:24 AM,
The day after I renew my Salon membership, they print this crap. I've left a comment here before (and you responded) about mercury: low constant exposures in the food supply (particularly fish) are the health problem, not thimerisol.
At 6/17/2005 10:28 AM,
I thought we all had moved past the vaccine link to autism? I didn't realize that people were still talking about it as if it were a valid hypothesis. I'm stunned.
At 6/17/2005 10:30 AM,
Great post, again, on this subject.
Kirby was on Imus this morning, which I listened to, and I think even RFK was making an appearance later in the show. Kirby has received lots of coverage from Imus, who has incredible juice with politicians and journalists. So, Kirby has predicted that we will see a congressional investigation on the matter by fall. Should help his book sales.
Every guest that I have heard on Imus that is asked about thimerosal has kissed his ass about it. This includes Chris Matthews this morning, Congressman Harold Ford a couple of weeks back, and many others.
Someone needs to take Imus to the mat on this one.
At 6/17/2005 12:17 PM,
Nicely done, sir. The more of us that debunk this crap, the better.
-Ali
At 6/17/2005 12:55 PM,
I seem to recall that there were case of the mercury levels in some batches of thimerisol being many times the level of what is considered safe. That would seem a health issue, even if there is no link between authism and thimerisol. However, having said that, i see a bigger health issue in not vacinating.
At 6/17/2005 1:10 PM,
I didn't even know that thimerosol was mercury-based. Your arguments about this junk science notwithstanding, I'm still pretty glad that my contact lens solution is "thimerosol free."
Please write a shorter, tighter version of this and send it in to Salon as a letter to the editor.
At 6/17/2005 1:47 PM,
I read Salon years ago, but not enough to justify paying for it.
Also, since Discover magagzine came out with an incredibly stupid article call "Mercury, Our Preferred Poison" which not only insinuated that all forms of mercury were poisonous, it ALSO had a paragraph on the MMR vaccine without mentioning or clarifying that the MMR has never contained thimerosal.... I've decided not to renew that one this year (well, we only subscribed as part of a middle-school fundraser).
Well, I guess sensationalism sells.
At 6/17/2005 1:52 PM,
I became convinced there was an autism/mercury connection a little over a year ago. I have read extensively the evidence in favor, and have found very little evidence against.
I read the majority of the IOM report in 2004 and was astounded at how they simply ignore the biological studies that showed, for example, that autistic kids are not excreting mercury naturally. Another study showed that upon chelation autistic kids excreted 6 times the mercury that would be expected. Oh yeah, a lot of those kids improved when they were chelated.
The IOM study found reasons to exclude all the epidemiological studies they didn't like, and forgave giant errors in the studies they did like.
For example, the Denmark study counted only impatient autistic kids in the earlier years, then started couting outpatient autistics in later years. Voila! The autism rates rose!
It is also an UNDISPUTED fact that no one in the government added up the amount of mercury that kids were getting in their vaccines until 1999, 8 years after the HiB and HepB vaccines were added.
The days of denial are coming to an end.
At 6/17/2005 2:06 PM,
Sonja,
I'm sorry, but chelation therapy for autism is quackery, pure and simple. There is no evidence that it helps. Indeed, encouraging the quacks who push chelation therapy is another reason why pushing this dubious mercury-autism connection is harmful. Parents waste money and time on dubious, expensive, and ineffective chelation.
Actually, in a way, I almost think it would be great if chelation therapy did work. Imagine a simple therapy that could reverse autism! Who wouldn't want that? However, that's just wishful thinking. Unfortunately, the disease is not that simple and chelation therapy does no good whatsoever. It's also not without risks.
At 6/17/2005 2:22 PM,
" I also point out that, due to activist pressure, the U.S. has already removed thimerosal from nearly all childhood vaccines, with the last vaccines expiring two years ago. "
I've seen this statement before, is there a source for it? To me it seems to be enough to shut down this 'controversy'. Why keep screaming about the danger of something that's been removed in spite of the lack of causative evidence?
At 6/17/2005 2:24 PM,
I am pleasantly surprised you didn't flush my comments.
I don't think it's too controversial to say it takes a lot of money to do the kind of trials the FDA likes to see before approving a treatment.
This has the effect of virtually shutting out therapies or drugs that big pharma can't profit from.
With respect to another treatment commonly used for autism, the gluten free/casein free diet, mainstream medicine has just in the last year found that it actually does help a statistically signicant group of autistics. The DAN! group has known this for 30 years.
There is at least one study in progress on chelation that might pass muster in the halls of science. We can only hope.
I am not impressed by your Quackwatch link. The quackwatch link heavily relies on the 2004 IOM report, which I have commented on. That there have been a few successful lawsuits against chelation is not surprising, giving how many practitioners use it. The use of IV DMPS is particularly dangerous. But MANY parents will tell you that it works. Very few will say it has hurt. The DAN! website displayed a poll recently showing over 70% of kids improved, only 2% got worse. Actually, 2% were reported to get worse on every type of treatment, including the vitamin treatments.
At 6/17/2005 2:25 PM,
One question popped into my head reading all of this which I haven't seen answered - if autism is caused by mercury poisoning - why are there so many more autistic boys than girls? Are there any other alleged poisons that target one gender over the other? In "real" mercury poisoning, are men more vulnerable?
At 6/17/2005 2:40 PM,
Putting aside the autism "link" I am curious about one claim posited by Sonja and the anti-vax group.
Vaccinations provided to newborns and 2/3/4 year old children are supposed to lead to elevated mercury levels years later, that are supposedly "chelated" in measurable amounts?
My fairly limited understanding of the physiology related to this subject is that we are talking about very, very small amounts of mercury. The only case I think that seems to be reasonable that might connect mercury and autism is some sort of immediate neurological damage that would be done at the time of the vaccination, to the child's developing brain. But the anti-vax groups seem to have abandoned this for the more far fetched "mercury poisoning"
The only reason that I can see for this line of thought is that mercury poisoning is "curable" while permanent brain damage is not. Seems part and parcel to the sad desperation that the parents feel when looking for answers.
If someone wants to enlighten me on the physiology here, that would be great. Please mention specific, peer reviewed studies if you can.
At 6/17/2005 2:45 PM,
Sonja:
Re: With respect to another treatment commonly used for autism, the gluten free/casein free diet, mainstream medicine has just in the last year found that it actually does help a statistically signicant group of autistics.
Do you have a source for this claim?
Also, regarding chelation – do you have a source to any studies that show this therapy works?
At 6/17/2005 2:52 PM,
I hope that ABC balances out the RFP interview with some reality. Perhaps someone who does research in autism who can point out the fallacy in the "autism epidemic".
Seriously, I just cannot understand why parents who are afraid of a miniscule amount of thimerosal are NOW so keen to put chelating CHEMICALS like DMSA and EDTA into their kids, either intraveneously or the "oral chelators" that are sold on the Internet. Or even think that the stinky transdermal chelation that I call "Buttar Cream" would have any effect what so ever.
So if Quackwatch does not float your boat, here is some more reading material:
http://www.nap.edu/books/030909237X/html/ and
http://ehp.niehs.nih.gov/members/2005/7712/7712.pdf ... there's a differnece between methyl and ethyl mercury
Checking out infants:
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=12480426&dopt=Abstract
and lots of kids at an HMO:
http://pediatrics.aappublications.org/cgi/content/abstract/112/5/1039
if you don't believe Americans, how about the UK?...
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_uids=15342824 ...
... or the Danes?
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=12949291&dopt=Abstract and http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=14519711&dopt=Abstract ...
Or do you just trust journalist, lawyers and politicians to make public health policies? Or even worse... the labs and clinics that sell "hair analysis" and chelation products?
At 6/17/2005 3:33 PM,
Thanks tremendously for this piece, Orac. It begs to be sent to Salon and beyond.
At 6/17/2005 3:41 PM,
Knowing how Danish health research is carried out, I am sceptic about Sonja's claims - it is standard practice in Denmark to show how the results would have been, if there hadn't been a change of practice, so even if they changed who was included in the count, they would also show the numbers by the old counting method (or alternatively, adjust the old numbers to the new method).
Such large-scale health research is not carried out by private agencies in Denmark, but is state funded. As Denmark has a public health system, it would be very much in the interest of the state to bring down the numbers of autists, so it is unlikely the results have been adjusted to disprove a real link.
Danish large-scale research is usually considered pretty good, if nothing else, then because of the sheer amount of data available to the researchers - the Danish health system, which include private doctors, is very well monitored, and all information about diseases are shared with the Ministry of Health, which uses the data to do research and statistics.
At 6/17/2005 3:44 PM,
An absolutely superb post. Thank you for spending the time and energy to put this kind of "journalism" in its place. All too often, people are willing to throw out well-researched evidence in favor of anecdotes and "feelings." It is difficult to get folks to spend the time to learn and understand facts, but we in the medical community need to continue to repeat the mantra "Anecdotes are not data."
At 6/17/2005 3:48 PM,
Re: With respect to another treatment commonly used for autism, the gluten free/casein free diet, mainstream medicine has just in the last year found that it actually does help a statistically signicant group of autistics.
A brief review of medline articles published on this issue does not support the above claim. A few studies have looked at autism and gluten, but few have shown any positive results. Only one rather small study that I could find showed any positive results and that on only one of four intended measures. There is some intriguing lab data suggesting that anti-gliadin antibodies and anti-cerebellar antibodies might both be found more frequently in autistic people than in people without autism. However, that does not prove a link between either the two antibodies or the clinical syndrome and either antibody. As far as I can tell, there is enough evidence to suggest that a larger, controlled trial would be warrented, but hardly enough to suggest changes in clinical practice (ie wheat free diets) based on the current level of evidence.
At 6/17/2005 3:51 PM,
I'm a Salon subscriber and every now and then they publish an article filled with pseudo-scientific claptrap. I'm generally aligned with their politics, but I have no patience for this kind of tripe. But you can't expect to agree with everything in a magazine, right? If you did, that would almost certainly be an indication of something wrong with you, the magazine or both. I'll keep my subscription, and I'll make my opinion known when I disagree. Not all people who subscribe to progressive politics/ideals are crystal-wearing, horoscope-reading, Scientology fodder. Some of us are quite reality-based. Centrist, even. Beware, this is an age where anyone who speaks up for the rights of the poor, criticizes income inequality or points out the flaws inherent in free-market capitalism is instanly branded a 'leftie moonbat' by the blowhards on the right. Don't whack that straw man!
At 6/17/2005 4:03 PM,
Devil's advocate moment...
(sidenote, I have drank my share of koolaid before and appreciate the perspective that Orac, skeptico, and others provide me. Thanks guys.)
On the flip side of the first diagnosis of autism in 1943, is it possible that this condition wasn't really prevalent enough to generate a discreet dianosis sometime prior to 1943? That is to ask, was autism already in existence, but simply without a name, or did a new condition appear that warranted a new diagnosis. I think Orac seemed to indicate that the first case (it already existed, but had no name)is true, but I wasn't sure.
At 6/17/2005 4:15 PM,
Anyway, great takedown! And how do you like Geier's company name 'MedCon'? A little too honest, maybe?
At 6/17/2005 4:19 PM,
gadfly, as far as I undersatand the history of autism, it did exist before, but not a diagnosis - looking back in retroperspective, it's possible to diagnosise older cases as autism.
However, I have only read sporatically on the subject, so Orac's answer would be much more authoriative than mine
At 6/17/2005 4:32 PM,
In re: history of ASD, I think it was Orac, several months ago who posted about a memoir by author Paul Collins entitled: "Not Even Wrong: Adventures in Autism." Even with all the reading I do on this subject, I was not made aware of this book until yesterday while going through the previous blogs/comments from some months back here. In his work, Collins goes back to the 1700s and traces the history of "autism".
At 6/17/2005 4:49 PM,
Good post. I'll add my voice to others saying you should tighten this up and ship it off to Salon and Rolling Stone.
I'm not an expert on any of this stuff, so when I read the Salon article, the descriptions of activities that resembled cover-ups caused me to be suspicious. On the other hand, the article's very neat wrapping of evidence also caused me to be suspicious. I truly don't know what to believe, but I do know that I'd like to see everyone provide more evidence.
I also think the context you add to the 'secret' meeting makes it far less diabolical -- but it would have been better for the people involved to be more open about what they were doing. I understand they were concerned about giving ammo to people who would advocate against vaccinations, but they should have realised that the information was going to come out sooner or later.
Now it's later, and hopefully they will act appropriately.
At 6/17/2005 5:05 PM,
Chelation Useless??? My son, Lenny, just finished regular kindergarten with flying colors. Not bad considering 4 years ago he had all the classic symptoms of regressive autism including complete loss of speech, tantrums, loss of eye contact, repetative obsessive-compulsive behaviors, unusual fixations, insomnia, etc. He was recovered with chelation therapy! And there are many more mercury poisoned kids just like him who are also being recovered with chelation. Lenny was the little boy featured in the Wall Street Journal's 15 February 2005 article on chelation treatment for autism by Amy Marcus (Winner of the 2005 Pulitzer Prize for Beat Reporting). The next thing someone will tell me that psychological and neurological evaluations were all wrong to begin with and that he really didn't have autism. Funny how this assessment goes down the toilet when you break out the home videos. Then someone will discredit me by saying I'm "anti-vaccine". Actually I'm "pro-vaccine"! My precious grandchildren are all being vaccinated with mercury-free vaccines. Then the argument will be that chelation is way too dangerous. This too isn't true as we used an FDA approved medication proven safe for use in children for chelating heavy metals like lead and mercury.
Chelation for autism is both effective and safe.
At 6/17/2005 5:28 PM,
The UCD MIND institute has a collection of presentations given by really world class researchers mostly in autism, but also in other neurodevelopmental disorders-
here:
http://www.ucdmc.ucdavis.edu/mindinstitute/events/recorded_events.html
Essentially, "the MIND" as they call themselves is in the pocket of parent activists because they "founded" it. The MIND seems to be constantly trying to be real scientists and also smooch up to people like Rick (rhymes with 'ick") Rollens. (hear him on the cityvisionsradio.com interview with Dr. Irva Hertz-Picciotto and Dr. Bryna Siegal [big names], you have to go to their archives and scroll down to find the autism program.)
That said, the researchers who come and speak have said things like "there is no cure for autism". I bet that made the MIND docs squirm a bit. ( I go to presentations.)
I'm getting to my point... if you listen to the recordings of Dr. Patricia Rodier (very, very nice woman) you can hear her describe a long term, large study on the GFCF diet being done at the University of Rochester.
She expresses concern over some autistic kids suffering from the restrictive diet (no vitamin D supplemented milk, low calcium, possibly).
The study has the parents who are already on the diet give their kids snacks provided by the researchers. The snacks might contain Gluten or Casein...
If Johnny starts screaming and bloating and mom reports it to the docs, well, they'll know if it's a coincidence or if it happens consistently when he gets the "bad snack".
The MIND has it's own GFCF study going now, I don't know if it's using the same protocol.
At any rate, for crying out loud, curing a kids bad gas and diarrhea is not curing autism is it? If so then bad gas and diarrhea are autism. Lets just call all stomach upset "autism". If the kid is sick he's not going to want to play as much or talk as much, duh.
Parents also give digestive enzymes, I have no idea if they help, but it makes money for Kirkman labs, for sure.
People can talk all they want about "brain damage" until you can show that mercury causes the specific developmental findings in autistic brains, either by fMRI, structural MRI, or post mortem tissue studies...
there's NO (steam coming out of my ears!) reason to believe that even one child has been made autistic by mercury!
How simple is that?
The mercury fanatics are screaming "autism epidemic" there has been NONE.
They are screaming "we know its the mercury" but what if it's something else, assuming that it IS environmental?
The really hysterical thing is this.
Kirby goes on Imus in the morning and claims so bravely that since the mercury has come out of vaccines in California and Illinois (?) that the rates seem to be slowing!
So funny! The recorded rates of autistic kids in those states haven't yet approached 1 in 166!! Not even close!
And yet it's the 1 in 166 number that is cited as proof of the autism epidemic!
The only state that has come close is Oregon, if I remember right, and it was something like 1 in 200 or 1 in 250. (due to a stronger inclination to diagnose autism than in other states)... this is all from the IDEA numbers from the feds (tracks disabled school kids). You have to take the approximate number of kids age 3 to 21 in the whole state and divide it by the number of autistic kids that age in the IDEA stats.
So, we have an epidemic, but we don't.
Kirby is a ninny.
He says on the "Huffington Post" "bring it on" He wants to debate the CDC or something like that...like he's such a big science brain.
Pulllease.
Orac Knows - you'll tell him he's a ninny won't you?
:-)
Anon.
At 6/17/2005 5:41 PM,
Why does concern about a thirmisol/autism link automatically make one anti-vaccine and anti-science? Certainly we have seen other cases of drug companies surpressing evidence that one their products is harmful. Do you have to accept every aspect of current medical practice in order to avoid being labeled a quack or the victim of a quack?
I have not reviewed the evidence enough to have an opinion on the thirmisol issue itself. I'm just wondering where the ire here comes from.
At 6/17/2005 6:04 PM,
that should be "thimerosal"
At 6/17/2005 6:17 PM,
Chelation Useless??? My son, Lenny, just finished regular kindergarten with flying colors. Not bad considering 4 years ago he had all the classic symptoms of regressive autism including complete loss of speech, tantrums, loss of eye contact, repetative obsessive-compulsive behaviors, unusual fixations, insomnia, etc. He was recovered with chelation therapy! And there are many more mercury poisoned kids just like him who are also being recovered with chelation.
Sounds like anecdotal evidence to me.
At 6/17/2005 7:10 PM,
http://autismdiva.blogspot.com/2005/06/herbert-sharp-gaudiano.html
Autism Diva has some quotes from a Herbert, Sharp and Guadiano article.
It's lengthy and Autism Diva finds it quite worthwhile reading.
In the world of mercury poisoning=autism
the highest proofs come from anectdotal reports like:
My child couldn't do anything at age 18 months but with brand X cure he could talk and read by age 48 months.
Yeah, kids who are 48 months generally can do more than kids who are 18 months. Lots can happen in 30 months.
Even better, they look at adult autisics who can write and who challenge their "cures" and the parent's say,
"They can write! They have jobs! My (35 month old) child can't write! He doesn't have a job!!!"
It's really funny. The point being that the adults don't know what it's like to be a child who can't write at 35 months or to be that child's parent. But many of those writing are parents to autistic kids. That would be because autism is genetic.
The not funny stuff comes when they call people like Amanda Baggs, who is and was fully autistic- never passing-for-normal for a minute- and very smart, a liar.
You can read her stuff on autistics.org
Autism Diva
At 6/17/2005 7:33 PM,
Thank you for this. You saved me the trouble of doing it myself on TT (Salon's Forum).
Now I can just let my post that the article is not objective and a piece of crap and the writer is an agenda ridden idiot stand. I will link to your blog to explain why.
Kudos to you.
At 6/17/2005 7:36 PM,
Wow, such a target-rich environment for commentary! First off - Orac, great job! Your laptop keyboard must still be smoking.
Secondly, to all those people who are proclaiming the merits of chelation and the GFCF (glute-free/casein-free) diet for autism: I have two boys who were diagnosed as being on the autistic spectrum. In the depths of the madness that is desperation, we treated them with all the "alternative" therapies that came around, including secretin, GFCF diet, chelation and the works.
One child did not change signficantly despite all of the "therapies" - the other is now "indistinguishable from neurotypical" in a mainstream public school classroom. The "recovered" child made most of his progress AFTER we stopped the "woo-woo" therapies. Bottom line - none of it was any better than placebo. We (their parents) thought it was working, swore up and down it was working and yet, when my wife stopped the therapies without telling me, I couldn't tell the difference. Hello, placebo effect!
As for "mainstream medicine" finding that the GFCF diet "...help[s] a statistically signicant group of autistics..." - well, I'll believe it when I see it published. Periodically, a group or individual will announce that they are studying one of these therapies, but the "study" always seems to fade away before it comes to fruition. Those that don't, like the secretin studies, usually show that it doesn't work.
Finally, I've found the "hidden hordes" that Kirby is looking for. If you take the US Department of Education (or California DDS) data, add the number of autistic children in each year to the number of mentally retarded children in each year, and then divide by the total number of disabled children (to correct for population changes) you'll find that the number is remarkably constant. That's right, the increase in "autism" has been very precisely mirrored by a decrease in mental retardation. Don't take my word for it, go to the US Dept. of Education website and look up the numbers yourself. A few minutes with a calculator will show you that I'm right.
Again, Orac, my hat is off to you (except in the OR - gotta keep JCAHO happy)!
Jim Laidler
Portland, Oregon USA
At 6/17/2005 8:52 PM,
You just decided to give some thought to the vaccine-autism connection. After 14 years of researching this issue, I find the current discussion regarding thimerasol to be counterproductive.
Vaccines can cause all sorts of developmental delays of the brain stem and nervous system, including, but not limited to, autism, because they contain the toxins or a form of the toxins which their manufacturers claim will "trick" the immune system into producing antibodies. These toxins--dead or alive or reformatted germs--can have the same effect on the immune system and gut, and nervous system, as the germs they are trying to immitate. THAT'S why the rubella part of the MMR shot can cause autism--rubella can cause deformities in a fetus if the expectant mother catches rubella (German Measles). Why shouldn't an injection of a form of rubella screw up the immature immune system as well?
Nice try closing the loopholes on a non-conspiracy, but the vaccine-autism issue is with us and it is not going away.
At 6/17/2005 9:02 PM,
What is your view on ABORTION?
While Muslims and Catholics even regard contraceptive evil, Would you like to know what do most people think of these religious taboo?
See it from the divine perspective ... http://divinetalk.blogspot.com/
At 6/17/2005 10:30 PM,
When I started practicing Pediatrics 24 years ago I had a stamp to print "mental retardation" on billing statements (I was also medical director for 2 pediatric nursing homes). My partners and I were discussing the other day that we have no children carrying that diagnosis now. They are all "pervasive developmental disorder, or austism spectrum disease, or autism." I cannot tell you that there are more or less children like that now -- I do not have the hard data, and hard data is what you need to make conclusions. I'm open to theories of the cause for autism but don't think mercury poisoning is it. I think the abnormality is more fundamental, genetic, and profound than that. I sympathize with these kids' parents and understand how hungry they are to find a cause or responsible party or effective treatment. The problem with diseases we don't understand yet is that there is never a shortage of people willing to give their theories and offer possible treatments. I do know that most people do not understand scientific method or double blind studies or placebo effect. I usually don't even believe the first reputable study until it's verified by others. This will be a long and painful debate.
At 6/17/2005 10:59 PM,
I'll answer just a few questions at a time.
Mercury has been shown in vitro to kill cell when combined with testosterone than when alone. Estrogen seems to